still have a fever

my fever is just not going away. i still have a fever every day. i went to the emergency on thurs night coz the fever was so high but the er was so busy and i would get a room very late so i came back home and took med. i was just to tired to wait that long so i had to come home. the fever never goes below 99. i have an appointment on mon and will get my blood work done. i still feel very tired. before i went for small walks but now im just to tired to  go. i spent most of the day in my room.

had to go to hospital

i came home on sat and in the evening i again had a fever. i was hoping that the fever would go away but it didnt go away so i again had to go the hospital on sunday. again the doc did all the blood tests and x-rays. and again they could not find any cause for the fever. well as soon as i got in the hospital the fever came down. now im back home as the fever was ok. i hope the fever will stay down this time. im still feeling alot of weakness and get tired fast. tomarrow i have an appointment with the doc and will also hhave to get my blood tests done.

not feeling better

the last few days have been very tough. due to strong chemo that they gave me i again had a fever. i was in the the hospital for about 4 days and i came home today. i still dont feel well and im tired all the time. even if i walk or even keep sitting for a while i get tired. so most of the time now i just stay in my room. due to chemo i have lost my appeitite. i feel nausea when i start eating. this chemo is very strong and it is making me weak. i just pray that it will also make the cancer cells weak.

tired and very sleepy

got my blood checked on mon and my platelet count was low so i had to get a platelet transfusion. this time the chemo that i got was very strong. since the chemo was so strong it has made we weak. i get tired very easily. i also get dizzy alot. it could be do to the med or due to the weakness that the chemo has caused. i now spend most of the day taking naps. i get tired very fast so have to take a nap after a little while.

4th chemo done

i had a doc appointment on wed. he said that i would again have to get chemo. so for the past 1 week i was in the hospital getting my chemo. the chemo didnt work much so this time the chemo was a mixture of 3 different types of drugs.   during the chemo treatment 1 of the chemo drugs gave me high fever of 105 degree so they gave me alot of steroids to keep the temp down. at first i thought the fever was do to some infection and everyone got scared but then the doc said it was probably due to chemo. now im at home and will go to the hospital on wed for my blood tests.

blasting did not decrease. . . . .

i had my bone marrow aspiration done on friday and the result was on wed. we were excited that hopefully this time the blasting(cancer cells) would have decreased a lot. but on wed when we went to see the doc we found out that the result was not good. the blasting had not decreased even a little bit since the last chemo.   last time the blasting was 68% and now the blasting was 75%. my cancer cells had not decreased but they had increased even more.   next wed i have another appointment with the doc and then they will tell what they plan to do next.

getting better

had my doc appointment. he said that he would not change the medicine but they will just wait and watch. the biosy report said the swelling on my legs was not due to any infection but it was a reaction to one of the antibiotics that they gave me. well the swelling on my legs is better now. i dont have trouble putting weight on my legs. when i walk a bit the swelling on my legs increases again so now im walking very little. the fissure pian has increased and is very painfull.

not well

i finally came home on tuesday. though i dont have a fever but i still feel sick. i just cant explain how im feeling. its like my whole body aches. my leg hurts from the biopsy and also from the swellings that are there. i cant walk properly coz my legs starts to pain when i put weight on them. my rectal fissure has again started to pain. i now also have a cold with watery eyes and nose to make things worse. i have an appointment with the doc on friday then maybe they will change my medicine or give me new one.

had a biopsy done

my fever is almost gone. it s ok during the day but at night the temp again starts to increase. they gave me so many antibitics over the last week. the swelling that i had on my leg is also getting better but it still pains when i walk. as the docs didnt know what was the cause of the swelling on my legs they gave me steroids to stop a reaction to one of the antibiotics and they also started a new antibiotic just in case if it was do to some infection. they also did a biopsy of the swelling to check it for infection or something else. in the biopsy they made a cut on my leg and then took a small amount of the swelling off. i got 3 stiches on my leg from were they took the skin. my leg was paining before but now because of stiches it has become even more painfull. the result of the biopsy will come in a couple of days. maybe after the result the doc will now the cause of the swelling.

in alot of pain

i have been seeing alot of docs since monday. they still have not really found a cause for the fever. one doc will say its an infection, another its a fungal infection, and then another will come and say it because of the chemo which made the white cells count low. the white cells are needed to fight infection. they just dont know so they have put me on alot and i mean alot of antibiotics. the antibiotics they have put me on are also very strong. they did decrease my fever for a day but then again i got a fever and this time with the fever i also got these little swellings on my lower legs. yesterday the swellings were small and not that painfull but today they have become so painfull and red. i can not walk properly now as when i put weight on my legs they pain alot. the doc said they might be an sideeffect of the antibiotics they are giving me. they also said it could be an infection. they have to do a biopsy of the swellings and that cant be done till monday. so they cant treat the swellings till then. i will just have to bear the pain till monday.

HIGH FEVER again

the last 2 days have been really bad for me. since monday i have been running a very high fever. on monday i had to go to the emergency room after which i got admitted to the hospital. the  fever is getting high as 103.9 and will not come down to normal. the fever might get down to 100 but instead of going more down to the normal 98.6 it will again increase. the last 2 days have made me really tired. the doc did all my tests like blood test, x-ray, ct scans and all was normal. the doc could not find a cause for my high and on going fever. i did have fevers before but nothing like this one. my temp never raised so much like this. when i used to take fever medcine it would come down to normal but this time its just not coming down. since the last 2 days the mininum temp was 99.9. im just praying to god that my temp will be normal soon coz it has made me really tired...

got blood and platelet transfusion

on friday i again had to get my blood labs done. my Hb and platelet count was low so i had to get 2 unit transfusions of blood and 5 units of platelets. they took the whole day and i came home at 2:00 am in the morning. its always so busy in the hospital on mon and fri. due chemo my appetite is again disturbed. my stomach always feels so full. i think this sideeffect will hopefully go away soon.

third cycle of chemo complete

i met the doc on wed. it went ok. he was saying that if the blasting decreases in this cycle then its ok and i will continue taking the chemo that im taking now or else they will give me another chemo. the third cycle of my chemo is now complete. the doc was saying that they will do a bonemarrow aspiration in 1-2 weeks to see how many blast cells are present. i also got my blood labs done wed everything was ok so i didnt need blood or platelets.

weekend with friend

the next day i got my platelet tranfusion. but the next day when i again got my blood labs done again my platelet count was low and so was my Hb so i again got a blood and platelet transfusion on friday. i got 2 units of blood and 6 units of platelets. my friend jagdeep came to vist me at my home. we enjoyed alot. one good thing about being here is that i get to meet my friends and family and dont have stay all the time in my room by myself. in india the doc would not let anyone visit me.

weekend with friend

the next day i got my platelet tranfusion. but the next day when i again got my blood labs done again my platelet count was low and so was my Hb so i again got a blood and platelet transfusion on friday. i got 2 units of blood and 6 units of platelets. my friend jagdeep came to vist me at my home. we enjoyed alot. one good thing about being here is that i get to meet my friends and family and dont have stay all the time in my room by myself. in india the doc would not let anyone visit me.

no platelets in hospital

today again i had a doc appointment. my Hb was ok but my platelet count was low. i was supposed to get a platelet transfusion today but the hospital was out of platelets so i will have to get them tomarrow. platelets  are needed to form a clot when there is bleeding. it means they stop bleeding. since my platelet count was low i need to be carefull so i dont hurt my self and cause bleeding. my third chemo cycle started so im feeling a bit nausea. but everything else is fine by grace of god.

cancer cells decreased

well  had my bone marrow aspiration done on monday. i also got transfusion of platelets on monday. the pain during the aspiration is alot less here then in india. in india it was so bad and the pain would go for so many days. it was really scary there.

 

i also got my bone aspiration report on wednesday. the result was not as i had wanted. the blasting(cancer cells) had decreased 20%. i was hoping that they would have decreased alot more. now the cancer cells are 68%.

 

the doc said it was ok. he did not change my medcine and said i should take it one more cycle and hopefully it will decrease the cancer cells more this time. i have aagain started the chemo medcine again starting today. i will have to take it for 14 days and then after 2-3 weeks again they will do a bone marrow aspiration.

 

on wednesday i also got 2 transfusions of blood as again my haemoglobin had decreased.

got blood transfusion

on wed i had an appointment with my doc. he said that on mon they would be doing the bonemarrow and by friday they would have the results. im praying that this time the results will be alot better then the last time.

my blood count was low so i had 2 transfusions of blood and 4 units of platelets. well i hope that will keep my counts up a week. when ever i have to get a transfusion it always takes so long and i get tired. on wed i came home at 11 pm.

well again i have to go hospital to marrow to get my blood checked again.

 

got blood tests done

today i had an appointment to get my blood checked. all was ok so i didnt need to get any kind of tranfusion.  thats probely coz i got 2 units of blood and a unit of platelets on sat so i guess they probely increased the haemoglobin.

i have been feeling ok but my sleep has become distrubed. im not able to sleep properly and when i wake up i feel just so tired and restless. i have been having headachs also. when they occur they are unberable. they pain alot and then after some time they go away. thank god for that.

well in 2-3 weeks my bone marrow aspiration will be done and that will show how much the chemo has worked. im praying to god that everything will hopefully be alright.

chemo completed

my chemo is now complete. i was supposed to take it for 14 days. my bone marrow aspiration will be done in about 2-3 weeks and it will show whether the chemo worked. im hoping that with gods grace that this time everything will be alright.

 the effects of chemo again have started to show. im lossing my appetite as my taste has changed. this a common side effect of chemo and happens to almost eveyone that is given chemo. it usally goes away after 2-3 weeks untill then about everything i eat tastes like it has bad flavour. the amount of saliva that is produed in the mouth also decreases so it becomes hard to swaollow. this is also a common side effect and also will go away after some time.

break for 2 days

i have been going to the hospital continusly to the hospital for so my days i finally got a break for 2 days. going to hospital takes up the whole day and makes me tired.

i have not got a blood transfusion for a couple of days so i think my HB might have decreased a bit. i went for a walk today but got tired and breathless so i think my HB must have decreased. i will go to the hospital tomarrow to get my blood checked.

im taking iv antibiotics to prevent an infection. everything else is fine by grace of the god

a very long day

today again we were in the hospital for about the whole day. we had alot of tests today. it was like almost every hr i had my blood drawn and my ECG done. it was a very long day and i got really tired. the doc said that were taking the tests to see how the medicine works. the chemo medicine that im taking now is new so to understand it better they have to do all the tests. its like they are experimenting on me to see how and what happens as they themseleves dont know either. i just hope the chemo works this time no matter how it works.

tomarrow again i have to go to the hospital for more tests. i think i will also get a blood and platelet transfusion.

fever is better

i came home yesterday evening as my fever was better but i still have to take my iv antibiotics. the doc also told me yesterday that they had found the bacteria in my blood that was causing the infection and fever. the bacteria is klebsela. now the antibiotics that im taking are for this bacteria. before they had found the bacteria they were just giving me broad spectrun antibiotics. it means that they were giving me antbiotics that usually kill alot of bacteria and hopefully it would also kill the bacteria that was causing my infection.

tomarrow again i have to go the hospital for my tests. i also have an appointment with my doc. 

im feeling ok now and i hope the fever wont come back. i get so restless with the fever. taking chemo also gets me tired and then the fever makes it worse. but thank god the fever is down and i hope it stays down.

alot of known and unknown friends have helped me out in alot of ways. im very thankfull to all of these friends. thanks guys.

fever AGAIN

yesterday when i came to hospital to get my tests done but it turned out that i had a fever. the doc gave me medcine and waited a bit for it to come down but it didnt come down and instead it got a bit higher. the doc then  sent me to emergency. again im on alot of antibiotics. im in the hospital again. the fever is a bit down now and im just praying to god that it does not rise again. i want to get discharged from the hospital as soon as possible. i want to go home.

a hectic day

today had to go the hospital early so that the doc could start the new chemo medicine. i have to take the medicine by mouth but i cant eat anything 1-2 hrs before or after taking the medicine. it was a very hectic day. i had to get my blood drawn about every hour till 5pm so it means that they really took alot of my blood today. i also had to get an ECG of the heart for 2 times. i had to give urine sample after every 4 hrs. so the whole day i was so busy sometimes i had to go here sometimes there. it did get pretty tiring. it was like i was running around the whole hospital.

tomarrow again i have to go the hospital to get my medicine. i hope it wont be that much hectic.

new chemo from tomarrow

today again we had an appointment with our doc he said that since the old chemo didnt work he was goinge to start a new chemo from tomarrow. i will be taking the chemo for about 14 days and then about after one month the doc will see its result. when i stay in hospital its just sooo expensive the cost for about one day in the hospital is around $10,000.

today i also had my blood tested along with an ECG of my haert. with the new chemo i will be having alot of ECGs. done.

the chemo that i will be given is also a new investigational drug. so its kind of an experiment. im praying to god that this time the new chemo will show alot better results then the old one.

chemo didnt work much

after feeling weak for a couple of days im feeling a bit ok. its like one min i will ok and the next i feel as i have no energy at all. its like i have no control over my body sometimes without even doing any thing i get all tired like i had so much of work.

 

on friday we had a appointment with the doc and he told us that the chemo didnt really work as my blasting (cancer cells) didnt decrease much. they barely decreased by 10%. the doc said they would try another type of chemo next week to decrease the cells. im just praying to god this new chemo will work and make all cancer cells zero.

tomarrow i again have to go the hospital to get my lab test done to see the blood counts.

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a bad day

as i woke up today i felt terrible. my whole body was aching and i felt as i had not selpt for even a single moment. i cant tell how much weaks im feeling. i thought that after this chemo maybe i would stay ok but today i knew that the chemo was showing its sideffects. now as long as the chemo in my body i will keep feeling like this. i cant even put this feeling in words its that bad.

today we met the transplant doc and he told me that even with the chemo there were still to many cancer cells in my body and i can not have a transplant untill my body is free is free of all the cancer cells.

tomarrow is my appointment with my other doc. he will tell us what other chemo or something else can be given to bring the cancer cells down.

i guess today was just not a good day for me. im feeling tense and weak.

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blood report was ok

well got my bone marrow aspiration done today. the result will come on monday. im praying to god that it will be good. also had my blood test done today my Hb and platelets were ok so i did not need a transfusion. the transfusions always take so long so i get tired thank god i didnt have to get one today.

today also i went for a small walk outside. i cant tell you how great it feels to be outside and moving about. as i have not really walked much for a long time i get tired easyly but i still love the little much that i can walk.

tomarrow i have another appointment with the bone marrow transplant doc. he will discuss with me about the transplant.

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back home

last night i came back home. its great to be back at home.

the doc told me that i should walk around a bit so today i went a little walk near the house. i went for a little while but it was nice to be outside. the docs in india had me locked not only in the house but also in the bedroom. i was forbidden to get out of the room. thank god i can at least move about in the house and go a bit outside. i just hope i dont any infection.

tomarrow i have a appointment to get my blood checked for hb, platelets and other things. my bonemarrow aspiration is also tomarrow. it hurts so much. well that doesnt matter im praying to god that my bonemarrow will show less amount of cancer cells. im a bit tensed about the result. i hope it will be good.

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it was an ok day

the doc came today and said that if my fever stays down then i can go home on monday. i want to go home so hopefully the fever will stay down. but my rectal region is the same. it still pains alot so im taking alot of pain killers to stop the pain.

 

today some my friends came to vist me. it was nice just like the old times but in the hospital now. i know that day will also come soon when we all friends will go out togther.

i miss india and all my family there. houston is good but india is good in its own place.

 

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fever is a bit down

my fever is better now (thank god). the doc is also giving me really strong antibiotics. even though the fever is better the doc still wont let me go home they say they want to keep me under observation. they said i could go home in a couple of days.

the side effects of chemo that they gave are now showing. my hair is falling out. my appetite has decreased. my stomach feels full and heavy even though i didnt eat much. the side effects makes you feel even more sick.

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cause of infection still not found

im getting a bit tired with all the docs coming one after the other to see what could the cause of the fever. i just hope they find the cause soon i just want to go home its hard staying the hospital for so long.

one GIT doc(stomach doc) came to see and he said he would do a test to see if there is an infection in the stomach region leading to the rectal region. the will probabely be on monday. the rectal pain is increasing day by day. it used to pain only during passing stool but now the pain has becoming almost all the time.

my Hb and platelets had decreased so i got 1 platelet transfusion and 2 blood transfusions. the chemo kills the cancer cells but along with cancer cell it also effects the good blood cells so im getting blood almost nowdays on a regular bases.

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at the hospital still

today was another day in the hospital. again alot of docs came to see how i was doing. they had changed the antibiotics to one that was really strong and wanted to know if it was working. my fever did come down a bit with it. the main thing that still is on my mind is that i think that the doc has still not found the cause of infection that is causing the fever. im feeling like they are just giving me a high dose and hoping the medicine will it self find the infection and will act.( just like hit and trail).one way or the other i just want to get well soon. im tired of all this and just want to get back to my normal life.

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past few days have been hard

we had an appointment on the 24-april-08 at md anderson to get my labs done. in this my blood tests are done. if my hb or platelets had been less then i would have to get a transfusion done. well i was prepared for a trsansfusion but what i wasnt prepared for was that i would have to get admitted in the emergency. it turned out that i was running a high fever (which means i could have an infection) which could be dangerous.

since then im at md anderson. my fever has been running high and was not coming down. it did come down on 27-april-08 my temperature was normal and i was so happy that i would get to go home the next day. i was all prepared to go home but before i could go home i again got a fever. docs here are not able to find the exact cause of my fever. today at least 10 docs with different specialities must have come to exam me. i feel like a guine pig with which all the docs are expermenting. they have taken sooo many blood samples to see if there is an infection but they just cant find an infection.

i just hope that they find the cause of infection soon bcoz i want to get well soon. the fever is making me more weak.

the fissure pain in my rectal region has also increased. it has become so strong that it is unbearable. im just afraid to even go to the bathroom. i cant tell how much it hurts its the worst pain in the world.

with pain i remember the first day in the emergency room. as im saying the rectal pain is bad no actually its veeeryy bad. the doc gave me morphine for the pain and said that before going to bathroom i should take a pill so that the pain would not be that bad. well it didnt have much effect on the pain but it did have an adverse effect on my urinary tract. what happened was i  wanted to urinate but i could not as i felt that there was a blockage somewhere. they had to put a catheter in(putting that thing in hurt like **) and over all this the nurse that was putting it in was new. when i thought that the pain ( in any part of my body whether in the rectal region or the urinary tract) could possibly not get any worse i had to go for a CAT SCAN of my stomach (o that was also paining). the material that they use for scanning has to be given by three ways. by mouth by vein that is iv and by RECTAL region. i specially told them that i dont want to get by the rectal region and they said thay would not give it. well guess what when i went for the scan the doc tried 4 times to give me the material through the rectum. she could not do it, well how could she it was already so swollen and painfull. at this time i was in most pain that i have ever gone through.

 

the last few days have been very tough and i dont know from were im getting the strenght to hang in there but i know i have to get through all this if not for me at least for all those who are praying for me day after day. i have to get through it for my family. i know i will get through it i just need to hang on.

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again pain

today again there was alot of pain. a surgical doctor came to look at the fissure and he said that the permanent treatment was surgery but with my condition that would not be possible so only temporary relief could be given. once the effect of the pain medicine stops then again the pain starts.

i might go home tomarrow. ill have to come to the hospital about after 2-3 days to see if my HB is fine and if i need blood or not. after 21 days the doctor will do a bone marrow aspiration to see if all my cancer cells have gone and then i can go for the bone marrow transplant.

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pain and more PAIN

today i got up at 3 in the morning to go to the bathroom but after that i was in so much of pain that after that i didnt sleep for a min. for about a month i have been having pain in the anal region on passing stool as a fissure (something like  crack) had developed in that region coz of sitting and lying on bed for almost 8 months. but the pain that i had today was to strong and was unbareble. since morning i have taken 6 tab for the pain but they had abosuletly no effect on the pain. the doc said i could be given morphine(one of the strongests pain killers) but the side effect of that would be constipation which i could not afford. then finally at evening they gave me an ointment to apply and it worked a bit.

im feeling a bit better.

my foot is still swollen. i can put some weight on it but after that it gets more swallen. it still pains when i walk so i need to use a walker. i try not to put weight on that foot. the doc said it was going to take time for it to get better.

 

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at MD ANDERSON now

for many days i was unable to write as my computer was not working. today mr inderjeet from md anderson gave me a laptop to use at the hospital.

 

my flight was very long and and i got very tired. our flight took 34hrs from amritsar to huston.

i stayed ok on the flight. my feet got a little swallon i thought that it was normal but the swelling on one of my feet was not going away. when we showed it to the doc he found out with an a ultrasound that there was a clot in my minor vein. i have been on strict bed rest for last 2 days as the docter said that if i walked the clot might dislodge and enter my lung causing a major problem. i did hot compress for my foot and the swelling has decreased a bit now. at first my foot was aching so much that i could not put any weight on it but now its a bit better.

 

im now at md anderson getting my treatment. before my transplant can be done they must get rid of all the cancer cells in my blood. this is called remission. after im in remission only then i can go for the transplant. im getting chemo now to kill the cancer cells.

 

i also found out that my gums were so swollen coz the cancer cells were present in them. with the chemo the swelling has decreased a bit to the extent that i can chew my food a bit now but its still present.

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same day as yesterday

Today again in the hospital getting transfusion of  blood and platelets. get so tired in the hospital. as oral antibiotics are not working i had get iv antibotics. last night i didnt have a fever but in the morning i had a fever.

today was a busy day coz had to all packing after we came back from the hospital. our flight is on tomarrow night at 10:45pm from amritsar and we will be reaching texas at 9:45pm on the 12-4-08. before our flight i again have to to the hospital for blood transfusion and to complte my antibiotic coverage.

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same day as yesterday

Today again in the hospital getting transfusion of  blood and platelets. get so tired in the hospital. as oral antibiotics are not working i had get iv antibotics. last night i didnt have a fever but in the morning i had a fever.

today was a busy day coz had to all packing after we came back from the hospital. our flight is on tomarrow night at 10:45pm from amritsar and we will be reaching texas at 9:45pm on the 12-4-08. before our flight i again have to to the hospital for blood transfusion and to complte my antibiotic coverage.

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had to go to hospital

Today when i woke up i was so tired. i had alot of trouble getting up as i was feeling like i had no energy in my body. my fever had increased and the effect of medicine was only for a little while. i knew that today i would have to go to hospital. at the hospital doctor said i had an infection. alot of tests were done but the site and cause of infection was not found so they gave me antibiotics. hopefully  the antibiotic would find the infection. at home everyone is very particular about infections but still i ended up with an infection. i guess my immune system has become very weak.

 

After the antibiotics my fever was dwon a bit but only in the evening did my tempertaure become normal. i sweat so much that even my whole beding got wet.

 

Today i also got a blood and platelet tranfusion. my HB was only 6.3 and platelet count was 9,000 were as the normal is around 1,50,000-4,00,000. tomarrow i will get another transfusion of blood and platelets.

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had a fever

Today again i was not feeling well in the morning. i felt very weak and tired. it was like i had not slept for a single min at nite.

In the afternoon i started feeling cold even though everyone was saying that it was so hot outside. i checked my temperature and found out that i had a fever. nowdays my normal body temp is rasied so i cant tell if my body is feeling warm normaly or due to  fever. i took medicine for the fever after which i sweat alot and finally felt a little better but with  alot of weakness.

 

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a hard day

as i woke up i knew that today was not going to be a good day. my whole body was aching with pain alot. i was also sweating a lot. i tried to get up but my body was just to tired to do anything so i went back to sleep. then i got up about 3 hrs later but i felt the same. i had my medicines for body aches but the pain didnt improve. in the evening i felt a bit better. i think the medicine works slowly on me now not like befor when it used to act right away. alot of friends and family members are coming at home to give there well wishes.

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normal day for me

Today everyone was busy with their shopping and packing. the air was a little less tense as everyone was busy. i just stayed at room and told my family to get the things i needed as im not allowed to go outside.

The day for me was preety much the same. i just went through the day in my normal manner and watched everyone working.

My gums are the same not much difference in the swelling. I think i have become used to them so dont get irritated anymore. i also learned not to chew my food but just swallow it.

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GOT THE VISA

yesterday there was some problem in the net so was unable to update my dairy.

yesterday was a good day as i got the news that i had been given the visa.

my appointment date has changed to the 14th april as i would not have been able to make it on the 7th coz of delay in the visa process. we were all worried about it very much but at last by grace of god we have got it.

yesterday we went to the dentist as my gum problem was increasing day by day.

he said surgery would be needed to make my gums normal but that in my case would not be possible as my platelet count is low so it would be hard to stop the bleeding. he said i should do rinses with mouthwash and saline water. but the gums would become normal once i stopped taking hydroxy urea but i cant do that as it prevents the cancer cells from growing fast. he also told me to inject mouthwash below my gums with the help of a syringe. it worked a little but not much.

 

Today was a normal day and i followed my normal routine.

it was raining alot outside and the weather was great.

i slept alot today.

we were arranging to get the tickets today. hopefully, we will be in u.s by 12th.

alot of people call us and give good wishes. thanks to all of them for their support.

 

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day in the hospital

today, i have to spend another day at the hospital.

just came home a little while ago

today in the morning, i was walking in my room, after that i was feeling very breathless. so i decided to have CBC count done. in that, my HB and platelet count were low.

so, i have gone to the hospital for the blood and platelets transfusion( platelets help in clot formation when there is an injury)

 

as my platelet count was too low, so i needed fresh platelets instead of the stored ones with fresh platelets, the count increases 4 times as compared to stored ones.

 transfusion of blood and platelets has to be done carefully as there might be a reaction. i also usally feel itching with small swellings so avil and hydrocortisome( an antiallergic) had to given after which i felt fine.

 

the gums are still the same. they almost cover up my lower teeth. only the tips are visible.

overall the day was alright as i spent most of it sleeping.

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visa delayed

Last night i was unable to write as i got a fever. I was really tired. I took my medicine and fell asleep so was unable to write. Felt tired the whole day yesterday at first i couldnt understand why i was feeling like this but when i checked my temp it turned out i had a fever.

 

Today my temp is fine. i feel a little better then yesterday.

today the whole day we were waiting for our passport to come back from the embassy but they did not come.

i gave my passport along with the documents to the american embassy to get my visa but still my passport has not come back to me. it seems that i will not be able to make it my appointment on 7-april-08. My appointment will have to rescheduled.

 

my gums have come more swollen. they still pain and i have alot of diffculty in eating.

 

 

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again the gum problem

today i woke up very restless and tired as i could not sleep properly last night. throughout the night my body was aching. the pain felt as it was deep down in my bones.

 

my gums are also making it very hard for me to have my meals properly. i took only two meals instead of my normal three as had alot of diffculty in eating coz of gums.

becoz of chemo that was given i had lost my appetite now i feel like eating a little bit i cant becoz of my gums. 

 

today my cousin went to the embassy to give them the documents that they had asked for. most probably we will get them back on wed. only then we go to america and get our treatment started. i just want to get back to normal as soon as possible.

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gum problems

day by day sometimes i feel like im getting more and more weak. i feel as i have very little amount of energy in me. i now sometimes feel that even the medicine is not woking anymore.

 

as the count of cancer cells has increased i have to take medicine called HYDROXY UREA to prevent them from increasing them any more. the side effect of the medicine is that my gums get all swollen and the worse part is that there is exactly no medicine to decrease the swelling. i have alot of pain in my gums. its becoming hard to eat.

 

alot of things give me strenght to face and pass all that im going through.

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feeling to tired

today i got my CBC done. its called complete blood count. it showed that cancer cells were 90%. neurophils which fight infection were very little around 3-4% so chances of infection were very high.

nows days i feel very weak and get tired very easly. it has been some time since i have done any orkuting with my friends. i feel just to tired to do anything. since my diagnosis i have lost around 27kgs.

took my medcines and meals as in my normal routine.

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day of comfort

today was a very comfortable day as compared to the days that i have gone through for a while. got up in the morning with no body ach. had my meals properly. for the last two days i had been waiting for some documents from MD ANDERSON TEXAS and today i got them. we have to take them to the american embassy to get our visa. alot of family members came home today i could not meet them but talked to them behind the door as they were not allowed to come in my room coz i could early catch an infection from them. they gave me alot of strength and support.

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miss my friends

got very tired yesterday and came home very late from the hospital so was unable to write.

i got 1 unit of blood transfused along with 1 unit of platelets yesterday and they took my whole day. chemo gets rid of the blast cells but it gets rid of RBCs and platelets along with the WBCs.

 

today after so many days i had a goodnites sleep.( i missed being at home.) but after waking up i again had alot of pain in my neck. i thought maybe the infection was going to start again. but after taking medicine it was fine (thank god) i didnt want to go back to hospital.

 

as per my normal routine i took my medicine.

also ate my meal properly today.

 

even though im feeling better but i miss going outside and hanging around with my friends.

its been so long since i have seen them. though i did chat with friends today but still its not the same as meeting them. misss them all alooooooooooooootttt.

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feeling better

since last night im in the hospital. thanks to magic of medicine im feeling better. my throat is fine and now at least i can drink water with ease. but last night didnt get a wink of sleep. the bed was to small for me and it was so unconfortable. im still in the hospital and hopefully i'll go home tomarrow.

 

i got two small chemos since yesterday with alot of antibiotics. my HB is 7.6 and with chemo its going to decrease more so most likely i'll have to get a blood transfusion tomarrow.

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soo much of confusion today

Last night i was very unconfortable and had alot of trouble sleeping and as i woke up today i knew that today was going to be a hard day full of pain and misery.

my throat was aching so badly that it was intorable. with alot of pain i had my tea but was unable to have my wheat grass juice.

 

When we contacted the docs they were not picking up. One was out of town and the other was simply toooooooooooooo busy.

when we did get in contact with them one said go for chemo or else the swelling and pain will not go away but he could not attened me as he was out of town.

The other doc said there was no need of chemo as most probably it was an infection.

Now there was so much confusion as wat to do so called an ENT doc and he said my tonsil was inflamed three times the normal.

 

so now im in Bajwa hospital getting chemo for lymph node inflamation and antibiotics for my tonsils. then only will i be able to eat. though im feeling a bit confortable now.

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lymph nodes

Dated March 22 2008

in the morning was not feeling to good.
started the morning in the usual manner with my wheat grass water ( its suppose to help increase the HB)
then had my milk while chatting with my friend Jaggi.
then went to sleep as there was pain in the neck region.
when called up the doctor he said i should get a FNAC( fine needle aspiration aspiration cytology) done of the swelling. in the test it was found that the swelling was not any swelling but my lymph nodes had become involved with the cancer cell so that was causing them to swell up.
today was a very unconfortable day due to the pain. i could not swallow any thing even my own saliva was causing so much pain. the little bit that i ate was mostly liqiued.

The doc on seeing my report said a chemo is must but as im planning to come to states it is not possible as all my counts will decrease and wont be able to travel. so for the time being as an alternative to chemo im taking HYDROXY UREA CAP.