at the hospital still

today was another day in the hospital. again alot of docs came to see how i was doing. they had changed the antibiotics to one that was really strong and wanted to know if it was working. my fever did come down a bit with it. the main thing that still is on my mind is that i think that the doc has still not found the cause of infection that is causing the fever. im feeling like they are just giving me a high dose and hoping the medicine will it self find the infection and will act.( just like hit and trail).one way or the other i just want to get well soon. im tired of all this and just want to get back to my normal life.

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past few days have been hard

we had an appointment on the 24-april-08 at md anderson to get my labs done. in this my blood tests are done. if my hb or platelets had been less then i would have to get a transfusion done. well i was prepared for a trsansfusion but what i wasnt prepared for was that i would have to get admitted in the emergency. it turned out that i was running a high fever (which means i could have an infection) which could be dangerous.

since then im at md anderson. my fever has been running high and was not coming down. it did come down on 27-april-08 my temperature was normal and i was so happy that i would get to go home the next day. i was all prepared to go home but before i could go home i again got a fever. docs here are not able to find the exact cause of my fever. today at least 10 docs with different specialities must have come to exam me. i feel like a guine pig with which all the docs are expermenting. they have taken sooo many blood samples to see if there is an infection but they just cant find an infection.

i just hope that they find the cause of infection soon bcoz i want to get well soon. the fever is making me more weak.

the fissure pain in my rectal region has also increased. it has become so strong that it is unbearable. im just afraid to even go to the bathroom. i cant tell how much it hurts its the worst pain in the world.

with pain i remember the first day in the emergency room. as im saying the rectal pain is bad no actually its veeeryy bad. the doc gave me morphine for the pain and said that before going to bathroom i should take a pill so that the pain would not be that bad. well it didnt have much effect on the pain but it did have an adverse effect on my urinary tract. what happened was i  wanted to urinate but i could not as i felt that there was a blockage somewhere. they had to put a catheter in(putting that thing in hurt like **) and over all this the nurse that was putting it in was new. when i thought that the pain ( in any part of my body whether in the rectal region or the urinary tract) could possibly not get any worse i had to go for a CAT SCAN of my stomach (o that was also paining). the material that they use for scanning has to be given by three ways. by mouth by vein that is iv and by RECTAL region. i specially told them that i dont want to get by the rectal region and they said thay would not give it. well guess what when i went for the scan the doc tried 4 times to give me the material through the rectum. she could not do it, well how could she it was already so swollen and painfull. at this time i was in most pain that i have ever gone through.

 

the last few days have been very tough and i dont know from were im getting the strenght to hang in there but i know i have to get through all this if not for me at least for all those who are praying for me day after day. i have to get through it for my family. i know i will get through it i just need to hang on.

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again pain

today again there was alot of pain. a surgical doctor came to look at the fissure and he said that the permanent treatment was surgery but with my condition that would not be possible so only temporary relief could be given. once the effect of the pain medicine stops then again the pain starts.

i might go home tomarrow. ill have to come to the hospital about after 2-3 days to see if my HB is fine and if i need blood or not. after 21 days the doctor will do a bone marrow aspiration to see if all my cancer cells have gone and then i can go for the bone marrow transplant.

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pain and more PAIN

today i got up at 3 in the morning to go to the bathroom but after that i was in so much of pain that after that i didnt sleep for a min. for about a month i have been having pain in the anal region on passing stool as a fissure (something like  crack) had developed in that region coz of sitting and lying on bed for almost 8 months. but the pain that i had today was to strong and was unbareble. since morning i have taken 6 tab for the pain but they had abosuletly no effect on the pain. the doc said i could be given morphine(one of the strongests pain killers) but the side effect of that would be constipation which i could not afford. then finally at evening they gave me an ointment to apply and it worked a bit.

im feeling a bit better.

my foot is still swollen. i can put some weight on it but after that it gets more swallen. it still pains when i walk so i need to use a walker. i try not to put weight on that foot. the doc said it was going to take time for it to get better.

 

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at MD ANDERSON now

for many days i was unable to write as my computer was not working. today mr inderjeet from md anderson gave me a laptop to use at the hospital.

 

my flight was very long and and i got very tired. our flight took 34hrs from amritsar to huston.

i stayed ok on the flight. my feet got a little swallon i thought that it was normal but the swelling on one of my feet was not going away. when we showed it to the doc he found out with an a ultrasound that there was a clot in my minor vein. i have been on strict bed rest for last 2 days as the docter said that if i walked the clot might dislodge and enter my lung causing a major problem. i did hot compress for my foot and the swelling has decreased a bit now. at first my foot was aching so much that i could not put any weight on it but now its a bit better.

 

im now at md anderson getting my treatment. before my transplant can be done they must get rid of all the cancer cells in my blood. this is called remission. after im in remission only then i can go for the transplant. im getting chemo now to kill the cancer cells.

 

i also found out that my gums were so swollen coz the cancer cells were present in them. with the chemo the swelling has decreased a bit to the extent that i can chew my food a bit now but its still present.

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same day as yesterday

Today again in the hospital getting transfusion of  blood and platelets. get so tired in the hospital. as oral antibiotics are not working i had get iv antibotics. last night i didnt have a fever but in the morning i had a fever.

today was a busy day coz had to all packing after we came back from the hospital. our flight is on tomarrow night at 10:45pm from amritsar and we will be reaching texas at 9:45pm on the 12-4-08. before our flight i again have to to the hospital for blood transfusion and to complte my antibiotic coverage.

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same day as yesterday

Today again in the hospital getting transfusion of  blood and platelets. get so tired in the hospital. as oral antibiotics are not working i had get iv antibotics. last night i didnt have a fever but in the morning i had a fever.

today was a busy day coz had to all packing after we came back from the hospital. our flight is on tomarrow night at 10:45pm from amritsar and we will be reaching texas at 9:45pm on the 12-4-08. before our flight i again have to to the hospital for blood transfusion and to complte my antibiotic coverage.

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had to go to hospital

Today when i woke up i was so tired. i had alot of trouble getting up as i was feeling like i had no energy in my body. my fever had increased and the effect of medicine was only for a little while. i knew that today i would have to go to hospital. at the hospital doctor said i had an infection. alot of tests were done but the site and cause of infection was not found so they gave me antibiotics. hopefully  the antibiotic would find the infection. at home everyone is very particular about infections but still i ended up with an infection. i guess my immune system has become very weak.

 

After the antibiotics my fever was dwon a bit but only in the evening did my tempertaure become normal. i sweat so much that even my whole beding got wet.

 

Today i also got a blood and platelet tranfusion. my HB was only 6.3 and platelet count was 9,000 were as the normal is around 1,50,000-4,00,000. tomarrow i will get another transfusion of blood and platelets.

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had a fever

Today again i was not feeling well in the morning. i felt very weak and tired. it was like i had not slept for a single min at nite.

In the afternoon i started feeling cold even though everyone was saying that it was so hot outside. i checked my temperature and found out that i had a fever. nowdays my normal body temp is rasied so i cant tell if my body is feeling warm normaly or due to  fever. i took medicine for the fever after which i sweat alot and finally felt a little better but with  alot of weakness.

 

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a hard day

as i woke up i knew that today was not going to be a good day. my whole body was aching with pain alot. i was also sweating a lot. i tried to get up but my body was just to tired to do anything so i went back to sleep. then i got up about 3 hrs later but i felt the same. i had my medicines for body aches but the pain didnt improve. in the evening i felt a bit better. i think the medicine works slowly on me now not like befor when it used to act right away. alot of friends and family members are coming at home to give there well wishes.

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normal day for me

Today everyone was busy with their shopping and packing. the air was a little less tense as everyone was busy. i just stayed at room and told my family to get the things i needed as im not allowed to go outside.

The day for me was preety much the same. i just went through the day in my normal manner and watched everyone working.

My gums are the same not much difference in the swelling. I think i have become used to them so dont get irritated anymore. i also learned not to chew my food but just swallow it.

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GOT THE VISA

yesterday there was some problem in the net so was unable to update my dairy.

yesterday was a good day as i got the news that i had been given the visa.

my appointment date has changed to the 14th april as i would not have been able to make it on the 7th coz of delay in the visa process. we were all worried about it very much but at last by grace of god we have got it.

yesterday we went to the dentist as my gum problem was increasing day by day.

he said surgery would be needed to make my gums normal but that in my case would not be possible as my platelet count is low so it would be hard to stop the bleeding. he said i should do rinses with mouthwash and saline water. but the gums would become normal once i stopped taking hydroxy urea but i cant do that as it prevents the cancer cells from growing fast. he also told me to inject mouthwash below my gums with the help of a syringe. it worked a little but not much.

 

Today was a normal day and i followed my normal routine.

it was raining alot outside and the weather was great.

i slept alot today.

we were arranging to get the tickets today. hopefully, we will be in u.s by 12th.

alot of people call us and give good wishes. thanks to all of them for their support.

 

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day in the hospital

today, i have to spend another day at the hospital.

just came home a little while ago

today in the morning, i was walking in my room, after that i was feeling very breathless. so i decided to have CBC count done. in that, my HB and platelet count were low.

so, i have gone to the hospital for the blood and platelets transfusion( platelets help in clot formation when there is an injury)

 

as my platelet count was too low, so i needed fresh platelets instead of the stored ones with fresh platelets, the count increases 4 times as compared to stored ones.

 transfusion of blood and platelets has to be done carefully as there might be a reaction. i also usally feel itching with small swellings so avil and hydrocortisome( an antiallergic) had to given after which i felt fine.

 

the gums are still the same. they almost cover up my lower teeth. only the tips are visible.

overall the day was alright as i spent most of it sleeping.

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visa delayed

Last night i was unable to write as i got a fever. I was really tired. I took my medicine and fell asleep so was unable to write. Felt tired the whole day yesterday at first i couldnt understand why i was feeling like this but when i checked my temp it turned out i had a fever.

 

Today my temp is fine. i feel a little better then yesterday.

today the whole day we were waiting for our passport to come back from the embassy but they did not come.

i gave my passport along with the documents to the american embassy to get my visa but still my passport has not come back to me. it seems that i will not be able to make it my appointment on 7-april-08. My appointment will have to rescheduled.

 

my gums have come more swollen. they still pain and i have alot of diffculty in eating.

 

 

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