chemo completed

my chemo is now complete. i was supposed to take it for 14 days. my bone marrow aspiration will be done in about 2-3 weeks and it will show whether the chemo worked. im hoping that with gods grace that this time everything will be alright.

 the effects of chemo again have started to show. im lossing my appetite as my taste has changed. this a common side effect of chemo and happens to almost eveyone that is given chemo. it usally goes away after 2-3 weeks untill then about everything i eat tastes like it has bad flavour. the amount of saliva that is produed in the mouth also decreases so it becomes hard to swaollow. this is also a common side effect and also will go away after some time.

break for 2 days

i have been going to the hospital continusly to the hospital for so my days i finally got a break for 2 days. going to hospital takes up the whole day and makes me tired.

i have not got a blood transfusion for a couple of days so i think my HB might have decreased a bit. i went for a walk today but got tired and breathless so i think my HB must have decreased. i will go to the hospital tomarrow to get my blood checked.

im taking iv antibiotics to prevent an infection. everything else is fine by grace of the god

a very long day

today again we were in the hospital for about the whole day. we had alot of tests today. it was like almost every hr i had my blood drawn and my ECG done. it was a very long day and i got really tired. the doc said that were taking the tests to see how the medicine works. the chemo medicine that im taking now is new so to understand it better they have to do all the tests. its like they are experimenting on me to see how and what happens as they themseleves dont know either. i just hope the chemo works this time no matter how it works.

tomarrow again i have to go to the hospital for more tests. i think i will also get a blood and platelet transfusion.

fever is better

i came home yesterday evening as my fever was better but i still have to take my iv antibiotics. the doc also told me yesterday that they had found the bacteria in my blood that was causing the infection and fever. the bacteria is klebsela. now the antibiotics that im taking are for this bacteria. before they had found the bacteria they were just giving me broad spectrun antibiotics. it means that they were giving me antbiotics that usually kill alot of bacteria and hopefully it would also kill the bacteria that was causing my infection.

tomarrow again i have to go the hospital for my tests. i also have an appointment with my doc. 

im feeling ok now and i hope the fever wont come back. i get so restless with the fever. taking chemo also gets me tired and then the fever makes it worse. but thank god the fever is down and i hope it stays down.

alot of known and unknown friends have helped me out in alot of ways. im very thankfull to all of these friends. thanks guys.

fever AGAIN

yesterday when i came to hospital to get my tests done but it turned out that i had a fever. the doc gave me medcine and waited a bit for it to come down but it didnt come down and instead it got a bit higher. the doc then  sent me to emergency. again im on alot of antibiotics. im in the hospital again. the fever is a bit down now and im just praying to god that it does not rise again. i want to get discharged from the hospital as soon as possible. i want to go home.

a hectic day

today had to go the hospital early so that the doc could start the new chemo medicine. i have to take the medicine by mouth but i cant eat anything 1-2 hrs before or after taking the medicine. it was a very hectic day. i had to get my blood drawn about every hour till 5pm so it means that they really took alot of my blood today. i also had to get an ECG of the heart for 2 times. i had to give urine sample after every 4 hrs. so the whole day i was so busy sometimes i had to go here sometimes there. it did get pretty tiring. it was like i was running around the whole hospital.

tomarrow again i have to go the hospital to get my medicine. i hope it wont be that much hectic.

new chemo from tomarrow

today again we had an appointment with our doc he said that since the old chemo didnt work he was goinge to start a new chemo from tomarrow. i will be taking the chemo for about 14 days and then about after one month the doc will see its result. when i stay in hospital its just sooo expensive the cost for about one day in the hospital is around $10,000.

today i also had my blood tested along with an ECG of my haert. with the new chemo i will be having alot of ECGs. done.

the chemo that i will be given is also a new investigational drug. so its kind of an experiment. im praying to god that this time the new chemo will show alot better results then the old one.

chemo didnt work much

after feeling weak for a couple of days im feeling a bit ok. its like one min i will ok and the next i feel as i have no energy at all. its like i have no control over my body sometimes without even doing any thing i get all tired like i had so much of work.

 

on friday we had a appointment with the doc and he told us that the chemo didnt really work as my blasting (cancer cells) didnt decrease much. they barely decreased by 10%. the doc said they would try another type of chemo next week to decrease the cells. im just praying to god this new chemo will work and make all cancer cells zero.

tomarrow i again have to go the hospital to get my lab test done to see the blood counts.

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a bad day

as i woke up today i felt terrible. my whole body was aching and i felt as i had not selpt for even a single moment. i cant tell how much weaks im feeling. i thought that after this chemo maybe i would stay ok but today i knew that the chemo was showing its sideffects. now as long as the chemo in my body i will keep feeling like this. i cant even put this feeling in words its that bad.

today we met the transplant doc and he told me that even with the chemo there were still to many cancer cells in my body and i can not have a transplant untill my body is free is free of all the cancer cells.

tomarrow is my appointment with my other doc. he will tell us what other chemo or something else can be given to bring the cancer cells down.

i guess today was just not a good day for me. im feeling tense and weak.

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blood report was ok

well got my bone marrow aspiration done today. the result will come on monday. im praying to god that it will be good. also had my blood test done today my Hb and platelets were ok so i did not need a transfusion. the transfusions always take so long so i get tired thank god i didnt have to get one today.

today also i went for a small walk outside. i cant tell you how great it feels to be outside and moving about. as i have not really walked much for a long time i get tired easyly but i still love the little much that i can walk.

tomarrow i have another appointment with the bone marrow transplant doc. he will discuss with me about the transplant.

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back home

last night i came back home. its great to be back at home.

the doc told me that i should walk around a bit so today i went a little walk near the house. i went for a little while but it was nice to be outside. the docs in india had me locked not only in the house but also in the bedroom. i was forbidden to get out of the room. thank god i can at least move about in the house and go a bit outside. i just hope i dont any infection.

tomarrow i have a appointment to get my blood checked for hb, platelets and other things. my bonemarrow aspiration is also tomarrow. it hurts so much. well that doesnt matter im praying to god that my bonemarrow will show less amount of cancer cells. im a bit tensed about the result. i hope it will be good.

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it was an ok day

the doc came today and said that if my fever stays down then i can go home on monday. i want to go home so hopefully the fever will stay down. but my rectal region is the same. it still pains alot so im taking alot of pain killers to stop the pain.

 

today some my friends came to vist me. it was nice just like the old times but in the hospital now. i know that day will also come soon when we all friends will go out togther.

i miss india and all my family there. houston is good but india is good in its own place.

 

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fever is a bit down

my fever is better now (thank god). the doc is also giving me really strong antibiotics. even though the fever is better the doc still wont let me go home they say they want to keep me under observation. they said i could go home in a couple of days.

the side effects of chemo that they gave are now showing. my hair is falling out. my appetite has decreased. my stomach feels full and heavy even though i didnt eat much. the side effects makes you feel even more sick.

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cause of infection still not found

im getting a bit tired with all the docs coming one after the other to see what could the cause of the fever. i just hope they find the cause soon i just want to go home its hard staying the hospital for so long.

one GIT doc(stomach doc) came to see and he said he would do a test to see if there is an infection in the stomach region leading to the rectal region. the will probabely be on monday. the rectal pain is increasing day by day. it used to pain only during passing stool but now the pain has becoming almost all the time.

my Hb and platelets had decreased so i got 1 platelet transfusion and 2 blood transfusions. the chemo kills the cancer cells but along with cancer cell it also effects the good blood cells so im getting blood almost nowdays on a regular bases.

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